September 24th, 2008 – May 12th, 2011
The hell is finally over. The agency is gone and I can finally take a piss without it being recorded.
To say I never wanted nurses in the first place would be an understatement, but I would have never been allowed to come home without them. Not because I needed 16 hours a day of nursing, but because whomever the powers that be didn’t think I would be safe.
Before I got the flu and got my trach no one ever thought I was in danger. I had my attendants get me up, shower me, cook for me and put me to bed. There was never a moment that my life was in danger at home alone. The trach did require some special training, but my sister and friends were all able to do it.
Why did I need to go through 5 months trying to get this nursing setup? I don’t know. The rehab place would not let me go home if I didn’t have 24 hour care. I was forced to spend 4 months in a nursing home waiting for the paperwork to go through. If I could walk I would have been home after a few weeks. I was disabled so obviously I wasn’t capable of making a decision.
More to come. Not a writer and I’m struggling how to word some parts.