In this blog I will be sharing mobility aids and mobility devices that I use daily. I will also be sharing mobility advice that has helped me keep an upper hand on my neurological disorder, Friedreich’s Ataxia.
My goal is to give my advice and ideas to others with mobility problems .
My name is Chris Meyer, I am 35 years old. I was born and raised in the smalltown of Chino Hills, California by my loving parents Jerry & Melissa. I have an older sister Amanda and younger Brother Jon. When I was younger I enjoyed many physical activities Growing up my passion was little league baseball. My brother and I play ball from 7 to 15 years old.
At age 15 close family and friends began to notice small abnormalities with my gait, this was attributed to my legs and feet growing. I attended Ruben S Ayala High School where my athleticism and motor skills began their decline. During my senior year I visited my family physician at Kaiser with vague symptoms looking for an answer. The doctor referred me to a Neurologist, upon my first visit I was sent for genetic testing. The results came back positive for Friedreich's Ataxia.
Friedreich's Ataxia is caused by a defect in a gene called Frataxin. This gene is located on chromosome 9, changes in this gene cause the body to make too much of a part of DNA called trinucleotide repeat (GAA). Normally, the body contains about 8 to 30 copies of GAA, I have over 800 copies.
Over the years I have come across many difficulties but have decided everything in life is about perspective. I now live in Downtown Fullerton with my beautiful girlfriend Adrianna and her 6 year old daughter Abby. Now living my life to the fullest everyday with an obstacle called Friedreich's Ataxia.
Today I am wheelchair bound and have had symptoms of friedreich's ataxia for over 20 years. This neurological disease affects every part of my life. Let me show you what mobility aids I have and how I use them.