My name is Chris Meyer. This is my mobility aids and equipment guide
Mobility aids and equipment guide
My name is Chris Meyer
I am 35 years old living in Chino Hills California. I have Friedreich's Ataxia a neuromuscular disorder. Confining me to a wheelchair and making every routine difficult because every muscle is affected but I'll show you how I have adapted daily task's and my mobility aids I use to live my life to the fullest.
Growing up in Chino Hills
As a child, I was always playing outside with friends and family. I would be out nearly every evening until the streetlights came on and was involved in many physical activities.
Fishing / Hiking
This was before the internet so my main source of entertainment was physical activities. I also played Little League baseball from the age of seven until 15 years old. Around the year 1995, my friends and family began to notice Abnormalities in my gait and movements. Attending Ruben S. Ayala high school my balance severely declined as well as any athleticism. Senior year is high school I went to a family physician at Kaiser Permanente. My symptoms were poor balance but mostly vague symptoms. The doctor immediately referred me to a neurologist who studied me over and filed through his medical books and took blood for a genetic test, A week or so had passed with no knowledge of the diagnosis. Then I re-visited the nuerologist for the results of my genetic test. The doctor stated the the genetic test confirmed I had Friedreich's Ataxia. My mom and I left Kaiser Permanente without Much information or understanding of Friedreich's Ataxia.The year is 1997, so my family and I go home and research the Internet on our home PC. After reading the information found about FA (Friedreich's Ataxia) we were devastated. There was no treatment or cure for this genetic life shortening neuromuscular disorder called Friedreich's Ataxia. My mobility and motor skills would decline in my future. Basically my nervous system is having trouble communicating with my muscles. Every Single muscle!
As I graduated high school staggering through the halls and attended Chaffey College earning an automotive degree and working part-time at an auto parts store my mobility and dexterity declined.
At the time I had a passion for cars and engines and was still able to execute my interest with minor adaptations because I could still walk short distances and move around. Around the age of 22 I transitioned to using a wheelchair. Learning how to drive with Hand controls and adapting to my Limited mobility in many aspects of my life .
I quickly realized my automotive knowledge would not be tangible in my future. So I began taking online courses for web business because I saw the rise of the internet coming and it was something I could do with limited mobility from my diagnosis of friedreich's ataxia.
Over the next 10 years, I worked in developing remote control car brands using my Internet skills in building their websites and web presence. Involved in many RC related projects ranging from E-commerce, Distribution, Sales, Manufacturing, and development of RC brands within the RC industry.
I am now wheelchair bound with multiple symptoms of friedreich's ataxia which effect me from brushing my teeth to tyeing my shoes.
My symptoms include:
Wheelchair bound - I can't walk
High Blood Pressure
Coordination and dexterity difficulties
.....and many other other symptoms.
Yet my symptoms are always progressing just as life does I'll keep moving forward. I won't let this mobility disorder stop me. The simplest of a task has become increasingly difficult or impossible and now need the assistance of friends and family. Several years ago I received a service dog "Geri" from Canine Companions for Independence Who helps me in daily task's. This website icantwalk.com will advise on mobility aids and equipment that I have found helpful in living wiht a disability. Friedreich's Ataxia
Being wheelchair bound I still have many hobbies and interests that I have adapted to make them accessible to my mobility impairments. Some of my hobbies are: